Jesus is a 10 year old boy from Greenville. Jesus battles Usher Syndrome, an extremely rare disease that leaves people hearing and visually impaired. Jesus has lives with being hearing impaired for most of his life however, he just recently started to lose his sight. Doctors fear that most of his sight will be lost in a short time frame.
Jesus loves trains and museums. We arranged for Jesus and his family to be transported by limousine from Greenville to Raleigh where they stayed two nights at the Embassy Suites. They had a fun day at Marbles Kid’s Museum then it was off to the New Hope Valley Railway to learn all about trains. Jesus was even asked to drive the train with the Engineer! It was a fun weekend for Jesus and his family.
A special thank you to Bob Clark’s Affordable Limousine Service and the New Hope Valley Railway for making Jesus’s day so much fun!
Thank you so much for all of your support in helping us make Jesus smile.
Zya is a 12-year-old young lady from Roanoke, VA being treated at Duke Children’s Hospital for Hodgkin’s Disease. Prior to her diagnosis, Zya loved playing sports including volleyball. After several months of active treatment, she is now needing a stem cell treatment leaving her isolated in the bone marrow unit at Duke.