Jesus is a 10 year old boy from Greenville. Jesus battles Usher Syndrome, an extremely rare disease that leaves people hearing and visually impaired. Jesus has lives with being hearing impaired for most of his life however, he just recently started to lose his sight. Doctors fear that most of his sight will be lost in a short time frame.
Jesus loves trains and museums. We arranged for Jesus and his family to be transported by limousine from Greenville to Raleigh where they stayed two nights at the Embassy Suites. They had a fun day at Marbles Kid’s Museum then it was off to the New Hope Valley Railway to learn all about trains. Jesus was even asked to drive the train with the Engineer! It was a fun weekend for Jesus and his family.
A special thank you to Bob Clark’s Affordable Limousine Service and the New Hope Valley Railway for making Jesus’s day so much fun!
Thank you so much for all of your support in helping us make Jesus smile.
Khamari is a 10 year old boy from Garner, NC. He has been battling a brain tumor for the last eight months. Sadly, Khamari and his family were told that he only had weeks to live. Khamari asked to go to Washington DC to sightsee and attend a Washington Wizards basketball game.
Jaylin is a 3 year old sweetheart from Mebane. Jaylin battles Hurler Syndrome which makes her have multiple physical challenges as well as being non-verbal. She received a stem cell cord blood transplant at Duke in 2014. Her family moved to North Carolina from West Virginia so they could be closer to her Doctors at Duke.